Thursday, September 10, 2015

Cloud with a silver lining

The last few days I have been feeling really good. This always happens about a week or so after my chemotherapy session. In the first 7-10 days I just want to sleep so I don't feel the pain. When I am awake I feel really ill, specifically nauseous, and that I’m like a zombie walking around. Gentle swimming helps me a lot because it wakes me up and I usually start swimming slowly 2 or 3 days I have my Chemo. Then I need about 5 or 6 more days to start feeling stronger and this is when I suddenly wake up and feel great so I take full advantage of it. I go swimming full force, running, Yoga, dancing you name it!! I never skip a day of exercise when I feel good. 

Some of the significant things that happened over the past month or so:

I decided to shave my head because my hair was falling a lot. This process was very hard for me. I am not used to seeing myself bald at all. Also my eyebrows are thinning out and my eye lashes are not so full right now (Thank God for makeup!!!) I have cried so many times because of this and of course wonder why is this happening to me. It feels like a bad dream, it is so surreal. After my second chemotherapy I was feeling really ill... then I looked at myself in the mirror and felt so helpless…I wondered how did I end up like this if all I have done is take care of my health. I wonder what did I do wrong, why is this happening to me. I honestly didn’t feel like writing in the past month because I’ve always wanted to be as positive as possible on this journey and in this blog and I just have not felt that way.  

That same week I went through genetic testing to learn if I have a genetic mutation or not. Because of Angelina Jolie’s experience this test has become extremely popular and now has a long waiting list. Genetic testing can be used to determine if someone has a change in their genes (mutation) that make them more likely to develop certain diseases such as cancer. Tests that measure likelihood for a disease are called “predictive genetic tests.” BRCA1 and BRCA2 are the most common genes involved in hereditary breast and ovarian cancers. Testing can be performed on either a blood or cheek swab sample to tell if a person has one of these BRCA mutations. This test does not detect whether a person has cancer or not; it indicates whether a person carries a change in one of these genes which can increase cancer risk. I tested positive, which means I carry the gene and it has developed. It also means that my chances of getting cancer back are higher. This news were devastating for me in the beginning. Due to this result my treatment will include two surgeries: a mastectomy with reconstruction and a Prophylactic oophorectomy which is the removal of my ovaries. Having this surgery will give me a higher probability of the cancer not coming back. I keep praying to God that this experience never comes back and I know it won’t. It is the hardest thing I have ever lived through. At the same time it is making me stronger and making me see how life is precious and how we need to live every moment and really be present because PRESENCE is all we have.

My third chemotherapy session was also very hard but somehow easier because now I have become stronger and know what to expect. I know I will feel terrible for a week or so but then I know that I will feel really good. I learned to accept myself bald. When I feel like it, I put makeup and nice earrings and my head covers and I feel like I look pretty, I actually like it. I have learned so much from this experience that I no longer see my outside looks only but also what I have learned and somehow I have become more secure within myself and who I am today. I feel more free and no longer see my physical looks only but also the beauty of my inside and how this experience has transformed me. Now, I look in the mirror and I see myself again. I know my hair, eyebrows and lashes will grow again. What matters is the spirit and how I can learn to live through this experience as a blessing in disguise. Or as my husband says a cloud with a silver lining. You also recognize that how you look is of such little importance relative to the opportunity to be alive and in good health and being close to those whom you love. That material possessions are completely insignificant. I still have a lot to learn but I feel like I am living life at another level now. I feel this every day and I actually love it. I have my last chemo at the end of this month and four weeks later the surgeries will start and hopefully this will place me in a position to return to my husband and boys and get back to my normal life.

If you are reading this and you have been diagnosed, there is no doubt that it will indeed be a very painful process, but know that there is light at the end of the tunnel even on those days when you don’t want to stand up from bed. Know that there is light even when you are at your worst and that even on those darkest nights there will God willing, always be another beautiful day to give you the opportunity to feel better. You must never lose faith. Keep your spirits up and offer your pain to those who are suffering more than you. I often think of one close friend and colleague of my husband’s whose journey has been so much longer and more difficult than mine yet she embraces life with such an amazing spirit and outlook. It helps to trust that God will always hold your hand and guide you through this process. There are so many that have so much less than us, that don’t even have access to a phone or computer to read this blog. I think about the situation in Syria, Iraq, Palestine, and Yemen, the victims and refugees from war and conflict around the world, and the people in developing countries that are not able to afford or access quality medical care. I thank God for everything we have and how fortunate we are to be able to treat my condition at a great facility with great doctors and a great support network. I can’t take this for granted and I don’t. There is more that I can give to help others and I hope this blog will at least help someone going through a similar experience to mine.

I am dedicating this blog to my beautiful mom. My mother has been on this journey with me from the beginning, she left her life in Mexico even though her parents are very old and need her. She is the central part of my family in Mexico, yet she left her husband and my brothers and sister to come help me with my youngest son and to support me with anything I need. She does not only help me, she does it with a big smile in her face, enjoying every moment with Oliver, and always concerned about my eating, sleeping, exercise, shopping, looks, she is always there and always with a BIG SMILE. Thank you mommy, I do not know what would I do without you, I love you so much and admire your attitude and positive view on life. I am blessed to have you on this journey with me.

24 comments:

  1. Cancer may have ravaged through your body, but your spirit, your zest for life, your love of family--that is stronger than any cancer demon. Thank you, Cecilia, for sharing your journey. Your posts are extremely moving, and they surely inspire many to value precious life. I especially teared up when you mentioned the love and support that your mother continues to give. For the love of a mother, how we love our children so very much. Much love and many blessings to you, your family and all those who love you.

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    1. Dearest Bonnie, thank you for your words. I have learned that life is beautiful but there is suffering and with this we either go down and give up or we grow and keep going with even a better life. I hope I grow, I think I am but still have a lot to learn.
      My mom is amazing I am not sure if I could do this without her. Hope you are having an amazing time in Italy!! I will visit you :)

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  2. God bless u, u are wonderful .. I can't wait to see u in Abu Dhabi .. And I'm sure always gorgeous as before and with ur nice big smile.. Let me know if u need anything for the boys .. I'm here and I'm willing to help .. Love u .. Wafa Bengra

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    1. Thank you Wafa for your loving words and support. I cannot wait to go back to my life and see what is next with my beautiful boys and husband. I will let you know if we need anything but everyone has been so amazing in Abu Dhabi that we have so much support thank God. Take care, Cecilia

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  3. Ánimo Cecy....lo que no te mata , te hace más fuerte ....admiro mucho tu actitud y valentía .... <3 <3 te mandamos besos y abrazos...

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    1. Asi es Floripundis, muchas gracias por tus palabras!! yo tambien les mando muchos besos y abrazos de oso :))

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  4. Amiguin, eres una guerrera con tantas cosas por enseñarnos aun! No sabes cuanto te admiro. Cada cancion de zumba me saca lagrimas y una oracion al cielo para que te llene de fuerzas y energia. Te quiero mucho!

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    1. Amiga querida gracias por tus palabras. Creeme que yo tengo mucho que aprender todavía, la vida esta llena de aventuras buenas y malas siempre va a ver mucha felicidad pero tambien mucho sufrimiento y hay que salir adelante lo mas que podamos no hay de otra. Dios esta ahi siempre, agarrandonos de la mano, enseñándonos la luz al final.
      Extraño mucho mis clases y las sonrisas de todas pero se que volveré y la pasaremos padrísimo! yo tambien te quiero mucho!!

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  5. Ceci, cada que leo tu blog te admiro más. Tu actitud y tu fe te seguirá llevando adelante. Eres muy afortunada en tener a tu mami cuidándote y ayudandote con esa gran sonrisa, nada como el cuidado que ella te puede brindar. Mucho ánimo, mucho éxito y como dijo Lao Tsé: "No hay que ir para atrás ni para darse impulso” Besos

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    1. Muchas Gracias!! no dice quien eres pero gracias por leer mi blog y por tus palabras tan alentadoras. Mi madre es un gran ser humano. :))

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  6. Hi, I work with Matt in Mubadala's Human Capital, and was asking him how you were doing, and he was kind enough to share your blog.
    I am very sorry that you are doing through this ordeal, but I have full confidence that with your positive energy and wonderful outlook you will indeed shake cancer off.
    I also think its so important to write and share blogs like these because it helps others understand what cancer fighters are going through, not just from a medical perspective, but an emotional one.
    My uncle is a huge presence in my life, and it has been devastating to me to watch him battle cancer in Khalifa Hospital. He was diagnosed with stage 4 colon cancer just after Ramadan. Regardless of what he is going through it still amazes me how he handles everything without a single compliant or negative thing to say, although I know he is going through a lot. So far he has been lucky that the symptoms from chemo have not been that strong, although he has only completed his second round and has 6 months more to go. I try to spend as much time as possible with him, not just to support him, but mostly because I enjoy his presence.

    I think we are all lucky, as you stated, that we have such wonderful support and medical assistance when so many have so little. I wish you all the best in your journey and send you my positive thoughts and energy.

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    1. Hi Aliaa, thank you for your comment. I am sorry about your uncle..I am sure he will be fine with that beautiful attitude. somehow God gives us strength and there is nothing we can do but trust him 100% even when we feel really bad. I am glad the chemo is not to hard on him..and 6 months its a long time but time pases fast and with your love and the rest of your family he will be fine. Much love to you and your uncle.

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  7. Your courage and bravery in the face of your illness is exemplary... Keep doing what you are doing... It's inspirational...

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  8. God bless you Cicilia... I am sure you will read this blog one day and smile... You have the strength to go through it and come back safe to your family and home... I pray for you all the time, love, Manal

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    1. Hi Manal, I know I will be back soon and I know this illness will make me stronger it is already allowing me to live life at a different level.

      Much love to you my dear!!

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  9. Dearest Ceci,
    You never cease to amaze me. Keep your beautiful spirit. I'm thinking about you every day.
    Love you,
    A

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    1. My dearest Anissa, Thank you for your constant encouragement and love through this process...I will be back on the dancefloor with you my dear. I love you so much!

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  10. Dear Cecilia,
    Dance Floor is waiting for you and we are as well ! Thank you for sharing your journey with us ! In few years you are going to look back and see that it was a chapter . Believe me ! The Zombie is going to be defeated !!! Much love , God bless you !!!!

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  11. Thank you so much Carole!! we will see you on the dance floor soon!!!

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  12. You are such an inspiration, sweet girl. This is Kathryn Krispin, the yoga teacher from Bodytree, BTW. Much love!

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    1. Thank you Kathryn!! i send you lots of love and light :))

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